2021 / 04

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DOI: 10.24075/medet.2021.031

ORIGINAL RESEARCH

Secondary progressive multiple sclerosis in Russia: problems and needs of patients, assessment of the quality of medical care through the eyes of patients and specialists

Gayduk AYa1, Vlasov YaV2, Churakov MV3, Polyarnaya NG3, Sineok EV2
About authors

1 International Centre for Education and Research in Neuropsychiatry, Samara State Medical University, Samara, Russia

2 Samara State Medical University, Samara, Russia

3 Center of Humanitarian technologies and research «Social Dynamics», Samara, Russia

Correspondence should be addressed: Arseny Ya. Gayduk
ul. Chapayevskaya, 89, Samarskaya obl., g. Samara, 443099, Russia; a. moc.liamg@kudyag.j

About paper

Author contribution: Gayduk AI — collection, systematization and analysis of data from academic literature, text authoring, manuscript formalization; Churakov MV, Polyarnaya N. G., Sineok EV — collection, processing and analysis of socio-d emographic and clinical data; Vlasov YaV — idea, research documentation formalization and registration, manuscript editing and revision, text improvement, final approval of the manuscript for publication.

Compliance with the ethical standards: this study was approved by the Ethics Committee of the Yaroslavl State Medical University of the Ministry of Health of Russia (minutes #21 of February 8, 2018). Each participant signed and submitted the voluntary informed consent form. Adult participants filled out questionnaires voluntarily. The conducted study does not endanger the participants and complies with the biomedical ethics requirements.

Received: 2021-10-07 Accepted: 2021-11-26 Published online: 2021-12-30
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Diagram 1. Professional status of patients before the disease
Diagram 2. SPMS patients about their EDSS scores
Diagram 3. Score estimated by neurologists for patients when establishing the SPMS diagnosis
Diagram 4. Difficulties in family life caused by the disease
Diagram 5. Clinic doctors visited by SPMS patients
Diagram 6. Frequency of examinations
Diagram 7. Reasons for refusal to undergo hospital treatment, % of those who answered the question
Diagram 8. Drugs taken by SPMS patients at different times
Diagram 9. Criteria of selection of therapy for SPMS patients (answers from neurologists)
Diagram 10. Tolerability of drugs by patients with SPMS, in % for each drug
Table 1. Interviewed patients by region
Table 2. Most discomforting symptoms