2022 / 02

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DOI: 10.24075/medet.2022.046

OPINION

About some issues of legal regulation of the status of participants involved in genomic research

Alimov EV
About authors

Academy of Labor and Social Relations, Moscow, Russia

Correspondence should be addressed: Emil V. Alimov
ul. Admirala Lazareva, 23, 117042, Moscow, Russia; moc.liamg@vomila.lime

Received: 2022-04-22 Accepted: 2022-05-27 Published online: 2022-06-30
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  1. Alimov EV, Novikova RG. International Legal Regulation of Genomic Research: a General Analysis of the Current State. The Academic Journal of Moscow City University. Series «Legal Sciences». 2019; (3): 27–32. Russian.
  2. Kubitovich SN. DNK kak nositel’ informacii neogranichennogo kruga lic. Vestnik jekonomicheskoj bezopasnosti. 2017; (4): 185– 190. Russian.
  3. Popova TV, Sergeev AB. The Federal Database of Genomic Information in the System of Ensuring the Balance of Private and Public Interests in Criminal Proceedings. Juridicheskaja nauka i pravoohranitel’naja praktika. 2017; 1 (39): 132–9. Russian.
  4. Rassolov IM, Chubukova SG. Protection of Genetic Data in Genetic Testing and Gene-Therapy Treatment: IT Law Aspects. Aktualnye problemy rossiyskogo prava. 2020; 15 (5): 65–72. Russian.
  5. Baranov VS, Baranova EV. Genom cheloveka, jepigenetika mnogofaktornyh boleznej i personificirovannaja medicina. Biosfera. 2012; 4 (1): 76–85. Russian.
  6. Dubov AB & Dyakov VG. Genomic Information Security: Legal Aspects of Interna-tional and National Regulation. Courier of the Kutafin Moscow State Law University (MSAL). 2019; (4): 127–137. Russian.
  7. Lin Z, Owen AB and Altman RB. Genomic Research and Human Subject Privacy. Science. 2004; 305 (5681): 183.
  8. Burcev AK, Vasil’ev SA. Issues of Establishing Legal Liability for Offenses Related to the Diagnosis and Human Genome Editing. Aktualnye problemy rossiyskogo prava. 2019; (8): 62–7. Russian.
  9. Mashkova KV, Varlen MV & Shirokov AYu. Self-Regulation of Genomic Studies and Prospects of Personified Medicine. Lex Russica. 2020; 73 (8): 54–61. Russian.
  10. Varlen MV, Mashkova KV, Zenin SS, Bartsits HL & Suvorov GN. Search for General Principles of Genomic Self-regulation Researching the Context of Ensuring Pri-ority Protection of Rights and Legitimate Interests of the Individual. Issues of Law. 2019; 3 (72): 11–20. Russian.
  11. Kolosova NM. Modern Model of Genomicand Other Research Regulations. Journal of Siberian Federal University. Humanities and Social Sciences. 2020; 13 (6): 1020–27.
  12. Alimov EV, Leshchenkov FA. Self-Regulation of genetic studies in Russia: search for the optimal model. RUDN Journal of Law. 2021; 25 (1): 126–143.
  13. Fletcher R, Fletcher S, Vagner Je. Klinicheskaja jepidemiologija: Osnovy dokazatel’noj mediciny. M.: Media Sfera; 1998; 352 s. (Russian).
  14. Varlen MV, Shirokov AYu, Shirokova TI. Self-Regulation of Genomic Studies and the Problem of Correct Interpretation of Sequencing Results by Consumers. Lex russica. 2020; 73 (7): 34–42. Russian.
  15. Branum R, Wolf SM. International Policies on Sharing Genomic Research Results with Relatives: Approaches to Balancing Privacy with Access. The Journal of Law, Medicine & Ethics. 2015; 43 (3): 576–93.